Leading the change for a cure
My Kool Brother was established in 2021 by Ashley & Dana Point. Their son, Davis, was diagnosed with KdVS in February 2016 at the age of 16 months after several hospitalizations.
My Kool Brother was founded with the goal of developing better medical therapies and treatment options for individuals with Koolen-de Vries Syndrome (KdVS). We hope to accomplish this by working directly with researchers and pharmaceutical companies.
Our Beloved Film Crew
Meet the awesome team of Hollywood professionals at Young and Lucid Media who created the documentary Davis Out of the Unknown. Our documentary helps share Davis’s story & hopes to increase awareness in the general public and the scientific community.
